Faith's Mom's Blog

This past weekend, Faith and I both got to experience the  Medora Musical  together - for the first time ever! We went with my dad and sister. The singing and dancing definitely met our expectations. After the National Anthem, some of the first songs they sang included, "Let's Hear it for the Boy" and "Dancing on the Ceiling." Both songs were a great and energetic way to start the show.  Faith was super excited, nearly dancing out of her chair! One reason she could hardly contain her excitement was that a few of the performers (Adam and Taylor) go to our church! The storytelling in between the musical numbers described how the little "cow town" of Medora came to be, as well as the influence that Theodore Roosevelt had in North Dakota.  View from our seats! Close up of the performers.  Auntie Dawn and Grandpa During the song, "Paint Your Dreams Across the Sky" by Dolly Parton, the cast invited the children to join them onstage. I wasn't ex

Faith and I had the best 4th of July ever! We started the day bright and early to go to the parade in Mandan. We haven't been there for many years, so I was surprised that she wanted to go. I think maybe it was because she heard everyone at her day program talking about it and making their own plans.  Faith's grandpa went along with us, as well as her auntie Dawn (my youngest sister). Thanks to Dawn's connections with people who live in Mandan, we were able to park the van at her friend's house and then he drove us down to Main Street. Then, thanks to another friend of hers, we were able to enjoy the parade underneath a canopy right in the front row. I could not be more grateful to her friends for making it such so convenient for us! One reason I was glad not to go to the parade in the past, was all the planning, parking, and walking it takes, not to mention sitting in the sun for almost 3 hours! Someone might wonder why it takes all that just to go to a parade. Mandan

Just recently I was able to go away for the weekend - for fun! For the first time in 18 years, I was able to travel to another city, stay overnight, and not have any doctors appointments or procedures. And what made it even better was going with my sisters!  Faith was well-looked after by respite care. She even had a friend come over to visit and her grandparents, too! Of course getting away did not come without a challenge or two.  The day before leaving, as I was cleaning the entire apartment and getting ready to pack, a staff member at Faith's day program told me her feeding pump was not working. I only had an hour before I had to pick her up so I cruised down to our DME provider and asked if I could get a loaner pump since hers was not working.  Unfortunately, they no longer carry the type of feeding pump she uses, so I needed to get a whole new system. This required me to learn how to use it and then make sure Faith's respite staff and her day program staff was going to kn

I know I have said this many times before, but I can't reiterate how thankful we are for the Inspire homeschooling group that Faith joined. Not only has she made some wonderful friends, her social skills have improved, she has more confidence, and she has learned a lot in science and history. Besides all of that, she has gotten to take part in their annual Christmas program, which she absolutely loves. Last year, she played the part of an angel and had a few lines to say. This year, she played the one and only bright shining star. Not only did she get a narration part, for which she had to memorize and say an entire paragraph worth of words, but she got to say the best line of the play, "SO MANY STARS!" This year's program, Starry Night, Noisy Night , told the birth of Jesus from the perspective of the animals that were present in the stable that night. There were sheep, chickens, cows, and of course a donkey. There were also shepherds, wise men, and angels. Mary

This December has definitely been a fun and festive one for our family! Normally we don't get too crazy over the holidays, but this year we did a few things that we normally don't do. I have probably mentioned that Faith is in a homeschooling group called Inspire Collective. She has been having so much fun hanging out with other kids and becoming friends with some of the girls in her class. Four of these girls are involved in Northern Plains Dance and this year we were invited by one of the moms to come and check out their performance of the Nutcracker. We had never actually seen the Nutcracker before and the three of us absolutely loved it! The music, the dancing, the acting, and the costumes all made it a really good production. I'm so thankful we were able to experience it. Who knows, it just might be a new tradition for us! Faith waiting for the Nutcracker to begin Having a fun time at the ballet! The next weekend we had to get ready for the Inspire Ch