Faith's Mom's Blog

When my dad told me he'd like to see Pembina Gorge sometime, I told him I had never heard of it. (I don't feel bad as I know many other North Dakotans who hadn't heard of it either!) In order to help make his dream a reality, I tried to schedule a weekend that my caregivers could come here to look after Faith. We settled on the first weekend in October. My mom decided to come as well. She said it would be the only nonmedical trip the three of us had taken together! We all hoped the fall foliage would be out in full force that weekend!  In preparing to go, I had typed up 3 pages of instructions for Faith's caregivers, one of whom was a loyal respite care provider who has been with us for over 3 years and also my sister. Both of them are very experienced and resourceful, but I printed out the instructions, nonetheless. Faith has been trying a new kind of food so that was a bit of an adjustment for them.  After dropping Faith off at her day program in the middle of a wind

This past weekend, Faith and I both got to experience the  Medora Musical  together - for the first time ever! We went with my dad and sister. The singing and dancing definitely met our expectations. After the National Anthem, some of the first songs they sang included, "Let's Hear it for the Boy" and "Dancing on the Ceiling." Both songs were a great and energetic way to start the show.  Faith was super excited, nearly dancing out of her chair! One reason she could hardly contain her excitement was that a few of the performers (Adam and Taylor) go to our church! The storytelling in between the musical numbers described how the little "cow town" of Medora came to be, as well as the influence that Theodore Roosevelt had in North Dakota.  View from our seats! Close up of the performers.  Auntie Dawn and Grandpa During the song, "Paint Your Dreams Across the Sky" by Dolly Parton, the cast invited the children to join them onstage. I wasn't ex

Today I thought it was quite fitting that on my one year anniversary of my new pacemaker, I was wearing a 24-hour Holter monitor! It's not because I'm having any issues with my pacemaker. Instead, I'm just preparing for my upcoming cardiology appointment next month.  Thankfully, my cardiologist from Mayo comes here to Bismarck, so I don't have to make the 1,000-mile round trip again! By the way, isn't amazing how small these Holter monitors are nowadays? I remember having to wear much larger ones that could not be hidden very easily, plus it was hard to sleep being attached to a big clunky machine. Last night, I hardly even knew this little one was there! I got my original pacemaker in August of 1999 but because the lead was getting old, my cardiology team wanted me to get a new one. It was last year on this day that I was recovering from the procedure. It still bends my mind how God took care of every single detail and that I had found enough people to look after F

Just recently I was able to go away for the weekend - for fun! For the first time in 18 years, I was able to travel to another city, stay overnight, and not have any doctors appointments or procedures. And what made it even better was going with my sisters!  Faith was well-looked after by respite care. She even had a friend come over to visit and her grandparents, too! Of course getting away did not come without a challenge or two.  The day before leaving, as I was cleaning the entire apartment and getting ready to pack, a staff member at Faith's day program told me her feeding pump was not working. I only had an hour before I had to pick her up so I cruised down to our DME provider and asked if I could get a loaner pump since hers was not working.  Unfortunately, they no longer carry the type of feeding pump she uses, so I needed to get a whole new system. This required me to learn how to use it and then make sure Faith's respite staff and her day program staff was going to kn